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Home
Services
Patient and Expert Engagement
Scientific Communications
Engagement Capabilities
About Us
Our Story
The Listening Room
Contact Us
Search
Home
Services
Patient and Expert Engagement
Scientific Communications
Engagement Capabilities
About Us
Our Story
The Listening Room
Contact Us
Home
Services
Patient and Expert Engagement
Scientific Communications
Engagement Capabilities
About Us
Our Story
The Listening Room
Contact Us
Search
Living Proof – Patients in Conversation
Lucy and Amy talk about being granddaughters of grandparents living with dementia.
"My Grandfather has mixed dementia and now lives in a care home"
Lucy
"My Grandmother has Alzheimer's and is cared for in her own home"
Amy
Discussion topics
Duration
Access here
Hopes and fears of living with IBD
Differing journey to diagnosis
Advocating for ourselves
Navigating sources of information & support
Describing the value of patient communities
Discussion Topics
Recognising the early signs
⏱️ 9 min listen 🔊
Intelligence and cognitive decline
⏱️ 7 min listen 🔊
Impact of change and the admin of life
⏱️ 5 min listen 🔊
Impact of change and the admin of life
⏱️ 13 min listen 🔊
Living the best life possible today
⏱️ 4 min listen 🔊
Lauren and Sahara talk about what it is like to live with Crohn’s and Inflammatory Bowel Disease.
"I've suffered from Crohn's for 7 years, managing it with treatment and lifestyle changes"
Lauren
"I underwent emergency surgery aged 19 and live with a stoma"
Sahara
Discussion Topics
Hopes and fears of living with IBD
⏱️ 6 min listen 🔊
Different journey to diagnosis
⏱️ 4 min listen 🔊
Advocating for ourselves
⏱️ 8 min listen 🔊
Language matters
⏱️ 30 secs listen 🔊
Poor communications on diagnosis
⏱️ 60 secs listen 🔊
Navigating sources of information & support
⏱️ 6 min listen 🔊
Describing the value of patient communities
⏱️ 3 min listen 🔊
